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Lay and professional accounts of the 'problem' of compliance amongst Pakistani people with type 2 diabetes
Bissell P, May C, Noyce PR Drug Usage and Pharmacy Practice Group, School of Pharmacy and Pharmaceutical Sciences, University of Manchester, M13 9PL
Introduction
It has been suggested that although health professionals are generally
cognisant that minority ethnic groups do not constitute monolithic
entities, a powerful assumption has been that cultural differences
within the UK population significantly affect health-related
behaviour. In this paper, I will explore the contrasting explanations
offered by health professionals and lay people for the 'problem' of
compliance with therapy amongst Pakistani people living in the UK with
a diagnosis of type 2 diabetes. The relevance of these findings to
promoting 'concordance' are discussed.
Methods
A qualitative approach was adopted given the small amount of research
that has been conducted in this area and the expressed desire to
explore the complex constructions of both groups in a sensitive,
contextually aware and in-depth manner (Mason 1996). Twenty-one
patients identifying themselves as of Pakistani origin were
interviewed, recruited from a hospital based diabetic centre and two
GP surgeries. Twenty health professionals involved in the care of
people with diabetes were interviewed. All interviews were tape
recorded, transcribed and searched for repeated themes. The approach
to analysis has been described in more depth by Mason (1996).
Themes in the data
Patients' explanations for non-compliance focused on the difficulties
they faced integrating the diabetic regimen in the face of competing
demands from the social context of their everyday lives. For example,
patients talked about caring for family, social obligations and the
demands of employment and their impact on compliance. They also
emphasised the difficulties involved in prioritising 'health' in the
face of these demands and in the context of living in an environment
of poverty and material deprivation.
By contrast, health professionals focussed on 'Asian' cultural
practices (a diet high in fats, oils and sugar, an emphasis on the
relationship between body size and health, and the social significance
of food and eating) in explaining non-compliance. In addition, they
emphasised the role of the Muslim religion and its putative link with
'fatalistic' attitudes in shaping patients' ability to take
responsibility for health.
Discussion
It is clear that there were marked discrepancies between the two sets
of accounts. Lambert and Sevak (1996) have suggested that
pathologising and reifying 'culture' and religion in the way described
by health professionals represents a form of victim blaming which has
the effect of ignoring other (often socio-economic) determinants of
health status. We suggest that the 'concordance' model may represent
one way of moving beyond this approach in terms of sharing and
mutually respecting the differing perspectives of health professionals
and patients.
References
- Lambert H, Sevak L (1996). Is the 'cultural' difference a useful concept? In Hillier S & Kelleher D (Eds) Researching cultural differences in Health. Routledge.
- Mason J. (1996). Qualitative researching. Sage
Presented at the HSRPP Conference 2000, Aberdeen
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